It is estimated that in the North East of England there are at least 50,000 people living with one of the most common 15 neurological conditions that include multiple sclerosis, motor neurone disease, Parkinson’s disease, stroke, dementia, cerebral palsy, epilepsy, Huntington’s disease and acquired brain injury. But care for people with neurological conditions – despite significant investment in health services in recent years and improvements in the speed of diagnosis and quality of acute medical treatment – is characterised by little to no community based treatment and support, very limited access to rehabilitation, poor information, a lack of coordination between services and unnecessary hospital admissions.
People with neurological conditions often experience health and social care that is fragmented and disconnected and there are failures in signposting people to existing services that could help them. The impact of this on the lives of individuals, their families, carers, friends and employers is real and damaging.
You can see how we’ve made a difference through our work at our Making a Difference section.
We’d like to hear from you, whether you have a long term condition or you are a carer or health practitioner.
At NNA we work with a range of brain and spine charities, networks and forums to campaign locally and nationally for better services for people with neurological conditions. Our aim is to help people have a say in how they live, to help them find and make changes to the services that can help them live well. We can only do this effectively by seeking your views about what you think is needed, what has worked well for you and any suggestions you have for improvements. As a charity we also need to ensure that we let you know about local and national developments that may affect the services that you need.