The Northern Neurological Alliance is delighted to announce the launch of a new specialist advocacy service for people with neurological conditions who are living in Newcastle and Gateshead, funded by the National Lottery through the Big Lottery Fund. The service will be provided by Advocacy Centre North which is a service within Newcastle Council for Voluntary Service (NCVS), and the Northern Neurological Alliance will provide expert knowledge and training about neurological conditions and the difficulties these may cause people.
This is the first and only specialist advocacy service for people with neurological conditions in England and will provide services for people in Newcastle and Gateshead. There are a wide range of neurological conditions, from stroke and spinal injury to multiple sclerosis, Parkinson’s disease and epilepsy. They include progressive and stable conditions, as well as sudden-onset neurological incidents, that can severely affect a person’s life.
All types of neurological conditions require life-long support. The service will aim to be as inclusive as possible. It will be provided using both paid and volunteer advocates who will be trained in how neurological conditions impact on everyday life and make it difficult to access information and services at the right time.
The advocates will support people to:
- Process and retain information
- Understand their rights and choices
- Make and communicate decisions
- Access services
- Address social isolation
- Live independently
- Interact with health and social care professionals
- Challenge assessments and care packages
- Develop skills to advocate for themselves where appropriate
Why is it important?
People with neurological conditions often have complex needs which are not fully understood. Their care pathways are fragmented and they are often disadvantaged in society and can face discrimination, many are socially isolated and face hardship.
When will the service be available?
ACN is taking referrals for the new service from October. Go to their website for further details and for information about how to make a referral: www.cvsnewcastle.org.uk/advocacy-centre-north